Some rare diseases have famous fundraising events attached to them, like the Ice Bucket Challenge for ALS or the many walks, runs, and telethons for diseases ranging from cystic fibrosis to muscular dystrophy. Other conditions, like Wilson’s Disease, a rare condition in which excess copper builds up in the body, …
Moving the needle for rare diseases
Each year, we designate the last day in February as Rare Disease Day to raise awareness about the potential impact we can make for this important segment of the world’s population. From policy makers to researchers to health authorities, we all play a part in making a difference for more …